I listened to Christine Namusoke’s story with a lot of sadness and tears rolling down my face. Christine narrated to me how in the school year of 2011, her five-year- old daughter Pauline was denied entry into four schools near their home, just because she had a deformity on her face. Pauline developed a tumor on her tongue and cheek, which made her face look different. Christine approached several schools in Nsambya, Kampala district, to enroll her daughter, but to her dismay, the head teachers of all the four schools objected.
They allegedly justified their denial of entry of the child in their schools as follows: Fellow pupils might beat the child to which mother could blame the school; Fellow pupils could tease the child as she looks terrifying. To date Pauline has not yet been admitted to any school. There is one school which promised to admit Pauline in the first term of 2012, on condition that she first be operated on and look better.
Pauline had her first operation at CoRSU Rehabilitation Hospital, Kisubi in May 2011. Her second operation is scheduled for May 2012, yet the schools begin in February. This means all this time, Pauline will be home while watching other children go to school! Pauline has no other health problem to prohibit her from enrolling into school. These schools which rejected Pauline, advised her mother to try other schools in Makindye and Kabalagala, but these are far away from where the child stays in Nsambya. What happened to Pauline is unfortunate. Such is the plight of children with disability. Shame be on the head teachers of these four schools and to all those who
would do the same if they are approached.
What they did shows clear discrimination of children with disability and violation of their basic rights. If this happened in Kampala where such school heads are expected to be at least more informed and enlighten, what if it were in rural schools? Children with disabilities are also children like others, with full rights especially the right to education or to be admitted in school, no matter how they look. We should respect diversity in humanity. What if such a child belonged to you or to one of these head teachers? Statistics indicate that there are over 500,000 children with disability in Uganda. The most commonly observed disabilities are loss and limited use of limbs, spine injuries, hearing difficulties, seeing difficulties, difficulty in speech and conveying messages, mental retardation, and mental illness, among others. It is observed and reported that despite efforts put in place by Government and other actors, children with disability are still treated with low priority in society. Consequently, this discrimination and neglect further erodes these children’s self-esteem and confidence to the extent that they cannot voice their needs and freely socialize with others. In 2010, Comprehensive Rehabilitation Services Uganda (CoRSU) CBR program carried out a disability mapping exercise in Katabi Sub-county, Wakiso District. Findings revealed that among the many difficulties faced by children with disabilities (CWDs) and other vulnerable children is the right to health, food, love, education, play and parental care.
Some sections of the community feel that spending resources on disabled children is “useless and deserve no attention because they are regarded as non-productive”. In the same exercise, during the consultative meetings held with the councilors, community development officers, parents and the sub-county chief of Kasanje, it was noted that attitude towards CWDs is
very negative and as a result, such children are often denied basics of life like healthcare, education and protection. This therefore shows that rights of these children are neither respected nor protected. Children are innocent; whether they look normal or different (abnormal), they are
human beings. They should not be discriminated against. All members of society should strive to protect them from discrimination. Disabled People’s Organizations and Government should scale up efforts to educate the masses about disability and basic child rights in Uganda.
By Hamad Lubwama