Ugandans and donors in the fight against Hemophilia disease have appealed to government to allocate funds for the treatment of patients living with this disease. The project manager Novo nordisk haemophilia foundation Mr. Shady Sedhom says that the government of Uganda should invest in equipping laboratories that test for haemophilia to enable patients cut on the current high cost of tests and treatment against this disease.Shady says that the 100 dollars is needed to carry out tests for haemophilia is too high, calling for assisting of patients to access treatment at low cost and training medical practitioners for the treatment of haemophilia.
The Executive Director Haemophilia foundation Uganda Agness Kisakye says 98% of patients with bleeding disorders caused by haemophilia in Uganda are not diagnosed and live with the disease for long which leads to their death.
In this vein the group fighting for the reduction of haemophilia cases in the country has organized a free test and educational sessions at a patient camp taking place at Pope Paul hotel in Kampala on Saturday this week.
Hemophilia is one of a group of inherited bleeding disorders that cause abnormal or exaggerated bleeding and poor blood clotting .
Haemophilia is an inherited condition that affects the blood’s ability to clot. Normally, when you cut yourself, substances in the blood known as clotting factors combine with blood cells called platelets to make the blood sticky. This makes the bleeding stop eventually.